Monday, April 30, 2012


The nurse said his doctor puts hearts on all his little patients.  <3
Tyler had the surgery to fix his tethered spinal cord and remove the cyst on the 19th.  The neurosurgeon told us it would take anywhere between 2 and 6 hours.  Fortunately, after only 2 1/2 hours we got the news that surgery was over.  The doctor told us everything went as planned.  He had to remove one bone to get to the cyst but then replaced it and glued it back in with some crazy glue or something.  We were taken to a hospital room and waited for Tyler to brought back from the recovery room.  He arrived and was crying and in and out of consciousness.  He was put on 2 different muscle relaxers to help control the muscle spasm he would have and morphine for the pain.  That first day was super tough.  While talking, Brian and I realized we were both so focused on just getting through the surgery we hadn't thought much about the post-op.  Tyler had to lie flat on his back for 48 hours and we could not pick him up.  He slept most of the first day but woke up when he would jerk from a muscle spasm or be in pain.  He didn't even open his eyes until around midnight.  That first night was horrible.  We got little sleep and Tyler was in bad shape.  Each day got better but Tyler refused to eat or drink for almost 3 days.  He was kept on fluids to keep from being dehydrated.  When they elevated his bed and we were finally able to pick him up is when he started eating.  We were in the hospital until Monday and sent home with muscle relaxer and pain medicine.  He is off the pain meds and we go back for a check-up with the surgeon this week.  We are happy to report that he only lost 1 ounce through this whole ordeal.  I have no idea how but we are super excited and he is now eating like a champ.  Tyler has once again proved he is Superman and we are so happy to have him home.

Care package from our awesome small group :)

All swollen up from laying face down during the surgery

Getting better.

Watching Backyardigans on the IPAD.....lifesaver.

Superman is home.

Thursday, April 26, 2012

Ty's Comedy Show

So I am running a little behind my posts but we made it through the surgery and I'm finished with school...FINALLY.  Will post about the surgery in a bit but wanted to update about the fundraiser in case you weren't able to attend.  The night could not have been more perfect! We were surrounded by our friends and family.  We were supported by local businesses, strangers, and our community.  Brian and I were talking about the night on our way to Louisville for Ty's surgery.  It was in my top 5 fave nights EVER.  We were able to just have a good time and laugh our butts off.  For that night, there was no worries and no stress.  We could just BE.  The comedians were hilarious and the outpouring of love and support filled my heart to the brim.  The local news even showed up to do a story on the event.
 Our wedding photographer, Matt Vickers even volunteered to shoot the event.  Here is the link to see the pics

As I've said before, the night was perfect and so much fun.  Thanks to everyone who came or donated.  Here is a list of local businesses who in one way or another made this event happen.  Please give them your business because they rock :)

Ri-Ra Irish Pub
Matt Vickers Photography
Dawn Waddle Mary Kay Consultant
Kahiki Tan
Stephani Gonzalez at Posh International Hair Studio
Serenity Custom Finishes
Julie Hope Photography
Heather Hoffman at Shear Talent
Red Lobster
Big Splash Adventure
Valerie Cole Mary Kay Consultant
The Granola Jar Cafe and Bakery
Spankey's Una Pizza

Also, this event REALLY couldn't have happened without the funny men themselves.  People are still telling me what a good time they had and how good these guys were.  Get ahold of them for your next event!

Clint Hall
Gavin Eddings
Big John Richardson

Sunday, April 1, 2012

Party Animal

Tyler turned one last week and we had a jungle themed party to celebrate.  Here are a few of my favorite pics from the day:

Another Update

I apologize for not posting for awhile but we have been super busy.  I am finishing my last semester of school which includes student teaching and a ton of work.  Tyler has more appointments than ever and sometimes I can't remember if we are coming or going.  This week is an exciting week though, we have Peyton for his spring break AND Thursday is Tyler's Benefit Comedy Show at Ri-Ra's.  I can't wait to see everyone and it is going to be such a fun evening.  It is going to be nice to relax and cut loose because exactly two weeks after the comedy show we will be in Louisville for Tyler's surgery.  He will be having his tethered spinal cord repaired.  The neurosurgeon will also be removing a cyst they found while doing an MRI that has been growing on his spine.  He is expected to be in the hospital for 2-5 days.  Our little guy is up to 15 pounds 13 ounces and this is all thanks to the feeding clinc.  He has been going there 1x a week and making great improvements with eating baby food.  There are still some issues going on and they recommended we add another weekly appointment. We are also still doing weekly physical therapy, occupational therapy, music therapy, and either speech or developmental therapy.  I am so proud of the strides that Tyler is making and here are a few pics of his new developments:

Prop sitting with a little help from Mrs. Beth

Up until about a month ago, Tyler couldn't hold any weight on his look at him go!

PS One of the main concerns we have had with Tyler's syndrome is seizures.  They are the most common symptom and fortunately Tyler has been seizure free until a few weeks shy of his birthday.  He spiked a fever and had a febrile seizure.  He was taken to the hospital by ambulance and released later that night.  Please pray that Tyler will be seizure free!!!!