Sunday, April 1, 2012

Another Update

I apologize for not posting for awhile but we have been super busy.  I am finishing my last semester of school which includes student teaching and a ton of work.  Tyler has more appointments than ever and sometimes I can't remember if we are coming or going.  This week is an exciting week though, we have Peyton for his spring break AND Thursday is Tyler's Benefit Comedy Show at Ri-Ra's.  I can't wait to see everyone and it is going to be such a fun evening.  It is going to be nice to relax and cut loose because exactly two weeks after the comedy show we will be in Louisville for Tyler's surgery.  He will be having his tethered spinal cord repaired.  The neurosurgeon will also be removing a cyst they found while doing an MRI that has been growing on his spine.  He is expected to be in the hospital for 2-5 days.  Our little guy is up to 15 pounds 13 ounces and this is all thanks to the feeding clinc.  He has been going there 1x a week and making great improvements with eating baby food.  There are still some issues going on and they recommended we add another weekly appointment. We are also still doing weekly physical therapy, occupational therapy, music therapy, and either speech or developmental therapy.  I am so proud of the strides that Tyler is making and here are a few pics of his new developments:

Prop sitting with a little help from Mrs. Beth

Up until about a month ago, Tyler couldn't hold any weight on his look at him go!

PS One of the main concerns we have had with Tyler's syndrome is seizures.  They are the most common symptom and fortunately Tyler has been seizure free until a few weeks shy of his birthday.  He spiked a fever and had a febrile seizure.  He was taken to the hospital by ambulance and released later that night.  Please pray that Tyler will be seizure free!!!!

1 comment:

  1. Had a GREAT time at Ri Ra's. Had a lot of good laughs and everyone seemed to have had fun. Some more than others....aka the Cackler. I can still hear that lady laff.