The events of our life from my perspective. Inspired by a little boy.....
Saturday, February 4, 2012
Dysmorphic Facial Features..... I'm sure you're wondering what I'm talking about. Those words are the reason the NICU doctor gave us for wanting to do a chromosome analysis 2 days after Tyler was born. Don't get me wrong, I will forever be grateful to that doctor. He saw something that made him do tests that diagnosed Tyler before we even left the hospital. We were able to start therapy and find medical problems immediately. We know families who don't receieve a diagnosis for years. However, lets just say I wasn't so grateful the day a doctor told me my precious newborn baby didn't look right. Dysmorphic Facial Features. Dys-morph-ic. Uggghhh! It sounds like he has an ear growing out of his nose or something. Couldn't we think of a better way to break it to a brand new mother that her child could possibly have a life-altering medical condition? Since that day, medical professionals still use the medical terminology to describe Tyler and his symptoms. They see those "dysmorphic features", I see perfection. Back in the summer, when Kammy's Kause asked for artwork from our kids to auction off at their fundraiser, I had an idea. Luckily, my mother in-law bid high enough that we didn't have to let it go :)