Wednesday, November 7, 2012

Halloween Contest

This is the 2nd year in a row that is holding a halloween contest to raise awareness for Tyler's syndrome.  Last year, they gave away several IPads to the winners and this year they are doing the same.  They have decided to add ITunes gift cards for the people who already have Ipads to be able to purchase some of the more expensive apps.  This site is very special to us.  When we first received Tyler's diagnosis, the internet was our main source of information.  None of the doctors we were seeing had ever heard of the syndrome let alone treat a child who had the diagnosis.  The internet can be a very scary place and much of the information we found told us Tyler would probably not walk, talk, or may not even survive past infancy.  Thank goodness we found the site which had current stories and videos of real children who showed us a much brighter future than we had envisioned.  We joined this community and they embraced us.  It was an excellent resource for the many questions we have had.  Something I learned is that when you google a topic, the site that has received the most traffic will be near the top.  This contest creates thousands of new visitors to the site and also raises awareness about the syndrome.  The goal is to keep as one of the first sites a new parent will visit when they have a newly diagnosed child.  That way, they may see stories that give them hope; not statistics that are gloom and doom.  I am asking that you visit the site and vote for Tyler the lemur.  Take a look around, learn something, and pass on the link to friends.  Only one vote per device so vote on your phone, laptop, work computer, etc.  They won't release the winner or number of votes until the end but they do release clues throughout the week.  I have had some people question about the names on the right side and the numbers beside them.  Those are NOT number of votes but the posts that are associated with the child.  Happy voting and Go, Ty, Go

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